Children have the right to concealment of their identity on all information collected in the course of research. They also have this right with respect to written reports and any informal discussions about the research.
Knowledge of results
Children and the adults responsible for them have the right to be informed of the results of research in language that is appropriate to their level of understanding.
If experimental treatments believed to be beneficial are under investigation, children in control groups have the right to alternative beneficial treatments (if available) or to the same treatment (if found to be effective) once the research is complete.
Virtually every organization that has devised ethical principles for research has concluded that conflicts arising in research situations do not have simple right or wrong answers. The ultimate responsibility for the ethical integrity of research lies with the investigator. But researchers are advised—and often required—to seek advice from others. Committees for this purpose, called institutional review boards (IRBs), exist in colleges, universities, and other institutions, which follow U.S. federal guidelines for the protection of human subjects. If any risks to the safety and welfare of participants outweigh the worth of the research for advancing knowledge and improving life conditions, then preference is always given to the participants’ interests.
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